• Alexia

    Pompe, Cuba

  • Luke and Gig

    Luke and Gig
    Fabry, United States

  • Anisa

    MPS, Canada

The Patient Advocacy Leadership Awards


Application period opens May 15, 2017. Applications accepted on rolling basis through June 30, 2017.

Learn more

Supporting New and Innovative Programs to Advance the Lysosomal Storage Disorder (LSD) Community Worldwide.

Sanofi Genzyme's Global Patient Advocacy team launched the Patient Advocacy Leadership (PAL) Awards grants program in 2011 to encourage bold new ideas and programs to support the Lysosomal Storage Disorder (LSD) community worldwide. In the 6 years since the program was started, Sanofi Genzyme has awarded over $545,000 to support 43 unique projects. As an independent voice in the lysosomal storage disease community, patient organizations play a vital role in providing leadership, resources and access to care and support for patients and their families around the world. Sanofi Genzyme believes supporting their work is critical to optimizing patient care and meeting the ever-growing needs of the LSD community.

The PAL Awards program funds innovative projects focused on disease awareness and education, community mobilization, non-profit development, and patient care and support programs to allow organizations to begin new efforts to address unmet needs in their local LSD patient community. 

The PAL Awards program is open to charitable, not for profit organizations from around the world. There is no requirement for organization size or history in order to apply. Applicants may apply for up to $25,000 (USD) to support new projects. Organizations may apply each year, but may not apply for a program for which they've previously requested funding. 

All eligible applicants may apply for a maximum grant of $25,000 to support a new project (projects that have previously been submitted for consideration for a PAL Award and/or projects that are currently ongoing are not eligible for consideration). For more information on eligibility criteria and the application process, please review the information in the "Application Process" tab.

Watch David Roberts from Niemann-Pick UK (NP-UK) describe their PAL Award project and its impact on the Niemann-Pick community. To see more PAL Award videos please visit the Video tab.

"The mission of any of the organizations out there is to help spread awareness and information about the various conditions, and by participating in the PAL that gives you another tool essentially to be able to accomplish that mission, and the PAL Awards program gives you access to resources to be able to fulfill that vision and that mission."
-Jack Johnson, FSIG


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