• Alexia

    Pompe, Cuba

  • Luke and Gig

    Luke and Gigi
    Fabry, United States

  • Anisa

    MPS, Canada

The Patient Advocacy Leadership Awards


Application period opens November 12, 2018. Applications accepted on rolling basis through January 2, 2019.

View 2017 Winners

Supporting New and Innovative Programs to Advance the Lysosomal Storage Disorder (LSD) Community Worldwide.

Sanofi Genzyme's Global Patient Advocacy team launched the Patient Advocacy Leadership (PAL) Awards grants program in 2011 to encourage bold new ideas and programs to support the Lysosomal Storage Disorder (LSD) community worldwide. In the 7 years since the program was started, Sanofi Genzye has awarded over $810,000 to support 52 unique projects. As an independent voice in the lysosomal storage disease community, patient organizations play a vital role in providing leadership, resources and access to care and support for patients and their families around the world. Sanofi Genzyme believes supporting their work is critical to optimizing patient care and meeting the ever-growing needs of the LSD community.

The PAL Awards program funds innovative projects focused on disease awareness and education, community mobilization, non-profit development, and patient care and support programs to allow organizations to begin new efforts to address unmet needs in their local LSD patient community. 

The PAL Awards program is open to charitable, not for profit organizations from around the world. There is no requirement for organization size or history in order to apply. Applicants may apply for up to $25,000 (USD) to support new projects. Organizations may apply each year and may resubmit programs submitted in the past which did not receive funding from the PAL Awards. Applicants cannot receive funding from PAL Awards for two consecutive years.

All eligible applicants may apply for a maximum grant of $25,000 to support a new project (ongoing projects are not eligible for a PAL Award. All projects submitted must not have begun). For more information on eligibility criteria and the application process, please review the information in the "Application Process" tab.Supporting Collaborative and Innovative Programs to Advance the Lysosomal Storage Disorder (LSD) Community Worldwide.

"The mission of any of the organizations out there is to help spread awareness and information about the various conditions, and by participating in the PAL that gives you another tool essentially to be able to accomplish that mission, and the PAL Awards program gives you access to resources to be able to fulfill that vision and that mission."
-Jack Johnson, FSIG


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