Patient organizations from around the world responded to the 6th Annual PAL Awards program in 2016, submitting proposals for new collaborative and creative activities to support the LSD patient community. Out of 27 applicants, six patient organizations were selected by an Independent External Review Committee.
Proposals were received from patient organizations in 15 countries, across a variety of rare disease groups and disease communities. The successful applicants came from Vietnam, Poland, United Kingdom, Croatia, Brazil, and the United States/India.
The Independent External Review Committee spent hours carefully reviewing each application and examining the merits of each project. Ideas for new collaborative and innovative projects ranged from developing online platforms to educate medical students on the symptoms of lysosomal storage disorders to developing eLearning modules to train and inform patient advocate affiliates and patients about genetic sequencing. Each proposal was unique and sought to meet the needs of the LSD community.